從失智症家庭照顧者的需求探討線上支持平台的開發

Translated title of the contribution: Exploring the Development of an Online Support Platform Based on the Needs of Family Caregivers of Patients with Dementia

陳 偲宓, Li-Fan Liu

Research output: Contribution to journalArticlepeer-review

Abstract

This study aims to explore the needs of family caregivers of a person with dementia (PWD) and the ideas and suggestions for a website platform that provides social support. According to the results of interviews conducted for this study, the family caregivers of PWD, the following four themes were identified: the inconvenience of life due to caregiving, caring problems brought on by dementia symptoms, lack of channels and methods to receive training in caregiving, and the obligatory feeling that caregiving should be done by themselves. The needs of family caregivers of PWD are then mapped to the social support needed, forming four themes and thirteen sub-themes. Theme 1-Emotional Needs: (1) the need to relieve stress and (2) the ability to self-regulate emotionally. Theme 2-Tangible Needs: (1) the need to consult health care or social work experts, (2) a channel to find further resources, (3) high accessibility and availability of long-term services, (4) bilateral communication for case management, and (5) financial assistance. Theme 3-Informational Needs: (1) others' experience in dementia care, (2) information about dementia care and social welfare resources, and (3) lectures for caregivers. Theme 4-Social Networking Needs: (1) assistance from a family support network, (2) a network interaction with other caregivers of PWD, and (3) more interaction with friends. Caregivers hope that a website platform can provide information/courses about dementia, discussion forum, group communication, professional consultation, case management service, errand service, and matchmaking for temporary care service. This study suggests that future website platform for family caregivers of PWD can provide various multi-functional, interactive, and customized service channels to meet caregivers' needs for social support.
Translated title of the contributionExploring the Development of an Online Support Platform Based on the Needs of Family Caregivers of Patients with Dementia
Original languageChinese (Traditional)
Pages (from-to)37-55
Journal福祉科技與服務管理學刊=Journal of Gerontechnology and Service Management
Volume9
Issue number1
Publication statusPublished - 2021 Mar 31

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