探索失智症成年女兒照顧者的正向照顧經驗

Translated title of the contribution: Explore the Positive Aspects of Caregiving Experience in Adult Daughter Caregivers of Dementia

瀅年 邱, Ling-Hui Chang

Research output: Contribution to journalArticlepeer-review

Abstract

Introduction: Family caregivers play a vital role in community dementia care. Most studies have assumed caregiving as a stressful process and focused on stress management strategies. Only a few aimed to understand the positive aspects of caregiving. This study explored the features of positive experiences for adult daughter caregivers via routine caregiving activities, as well as the contexts in which these experiences were situated. The results can be used to develop related interventions. Methods: A purposive sample of six adult daughter caregivers were recruited. Data derived from participant observations, in-depth semi-structured interviews, and occupational dairies. The interviews were audiotaped and transcribed verbatim. Data analysis was guided by grounded theory. . Results: Adult daughter caregivers attained positive caregiving experiences from their evaluation of the caregiving results and the processes. The features included a sense of familial relatedness, accomplishment, enjoyment of life, personal growth and filial piety fulfillment, as well as a state of mindfulness. The interpretations of the caregivers and the socio-cultural contexts influenced the experiences. For example, caregivers adapted caregiving patterns to meet the changing needs of their parents and often were made to choose the “the lesser evil among two unfavorable choices.” They re-invented the interpretation of filial piety to not always follow the parents’ commands. Conclusion: The features of positive caregiving overlap much with well-being. Conventional norms hinder married daughters caring for their birth parents. We also need to be mindful for inadvertently promoting gender-typing caregiving with interventions that aim to promote positive caregiving.
Translated title of the contributionExplore the Positive Aspects of Caregiving Experience in Adult Daughter Caregivers of Dementia
Original languageChinese (Traditional)
Pages (from-to)72-95
Journal職能治療學會雜誌 = Journal of Occupational Therapy Association R.O.C.
Volume36
Issue number1
Publication statusPublished - 2018 Jun 1

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