腦性麻痺學童家長對福利補助與服務利用率和滿意度之初探研究

The aim of the study was to investigate the utilization rate, knowledge of application procedure for allowances and services, and satisfaction with welfare allowances and services among caregivers of children with cerebral palsy (CP). Seven hundred questionnaires were mailed to caregivers through 11 CP associations all over Taiwan, with 156 returned questionnaires (22% response rate). Results showed that the items most frequently applied for in each domain were living allowance (59.6%, daily living domain), travel allowance (59%, travel domain), early intervention services (49.4%, medical service domain), services related to evaluation/renting/repair/recycling of assistive devices (52.6%, assistive device domain) and tuition waiver (59.6%, education domain). No knowledge of application procedure for allowances and services was the main reason that caregivers did not use it. Small to high correlations were found between utilization rate and the degree of the knowledge of each item (Cramer's V .28-.81). Caregivers were most satisfied with the barrier-free campus service (70.4%), whereas most dissatisfied with the rehabus service (20.6%). Furthermore, results showed that caregivers of children in the age group of 3.0 to 6.9 years were less satisfied with living allowance. Higher satisfaction with special educational assistive devices was found in caregivers of male children and children in the age group of 7-12 years. Caregivers of children with athetoid subtype reported lower satisfaction with barrier-free campus. Caregivers of children in special educational schools reported higher satisfaction with barrier-free campus than those in regular schools. Results of the study could help the government and clinicians to better understand the needs of caregivers of children with CP, and serve as a reference for future policy making.