A follow-up study of genetic counseling in Down syndrome.

S. J. Lin, Mei-Chih Huang, S. H. Chen, C. J. Tsai, S. F. Shu

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

To ascertain the effects of genetic counseling on the education of counselees, a questionnaire study on the acceptance of genetic knowledge was carried out among 126 parents of children with Down syndrome. Those parents from the "Down Syndrome Association" had best scores for knowledge, followed by those who had received counseling according to a designed format (programmed counseling) in this Hospital. Parental perceptions of the information needed in genetic counseling were also studied and it was found that most parents thought that the topics of education and medical care were more important than genetic information. Realization of such difference in primary concern between counselors and counselees may improve the effectiveness of genetic counseling.

Original languageEnglish
Pages (from-to)192-196
Number of pages5
JournalZhonghua Minguo xiao er ke yi xue hui za zhi [Journal]. Zhonghua Minguo xiao er ke yi xue hui
Volume36
Issue number3
Publication statusPublished - 1995 Jan 1

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health

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