Correlates of health-related quality of life and the perception of its importance in caregivers of children with autism

Li Chen Tung; Chien Yu Huang; Mei Hui Tseng; Hsui Chen Yen; Yu Pei Tsai; Yu Ching Lin; Kuan Lin Chen

doi:10.1016/j.rasd.2014.06.010

Correlates of health-related quality of life and the perception of its importance in caregivers of children with autism

Li Chen Tung, Chien Yu Huang, Mei Hui Tseng, Hsui Chen Yen, Yu Pei Tsai, Yu Ching Lin, Kuan Lin Chen

Research output: Contribution to journal › Article › peer-review

22 Citations (Scopus)

Abstract

This study aims to investigate the correlates of health-related quality of life (HRQOL) and perceptions of the importance of each HRQOL domain in caregivers of children with autism. Eighty-two caregivers completed the World Health Organization Quality of Life and Parenting Stress Index Short Form to respectively measure the caregivers' HRQOL and parenting stress. The Childhood Autism Rating Scale and the Strength and Difficulties Questionnaire were used to respectively assess severity of autism and children's behavior problems. Results revealed that severity of autism, behavior problems, and parenting stress individually had low to moderate associations with HRQOL. However, all variables considered together, only parental distress (parent-related stress) significantly contributed to the four HRQOL domains. In addition, the physical domain was the most important HRQOL domain to caregivers, and environmental domain, the least. Knowledge of the correlates of HRQOL and the importance of each HRQOL domain could serve as guides for clinicians to improve the HRQOL of caregivers of children with autism by targeting parental distress and focusing on the HRQOL domains perceived as most important by caregivers.

Original language	English
Pages (from-to)	1235-1242
Number of pages	8
Journal	Research in Autism Spectrum Disorders
Volume	8
Issue number	9
DOIs	https://doi.org/10.1016/j.rasd.2014.06.010
Publication status	Published - 2014 Sept

All Science Journal Classification (ASJC) codes

Developmental and Educational Psychology
Clinical Psychology
Psychiatry and Mental health

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1016/j.rasd.2014.06.010

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title = "Correlates of health-related quality of life and the perception of its importance in caregivers of children with autism",

abstract = "This study aims to investigate the correlates of health-related quality of life (HRQOL) and perceptions of the importance of each HRQOL domain in caregivers of children with autism. Eighty-two caregivers completed the World Health Organization Quality of Life and Parenting Stress Index Short Form to respectively measure the caregivers' HRQOL and parenting stress. The Childhood Autism Rating Scale and the Strength and Difficulties Questionnaire were used to respectively assess severity of autism and children's behavior problems. Results revealed that severity of autism, behavior problems, and parenting stress individually had low to moderate associations with HRQOL. However, all variables considered together, only parental distress (parent-related stress) significantly contributed to the four HRQOL domains. In addition, the physical domain was the most important HRQOL domain to caregivers, and environmental domain, the least. Knowledge of the correlates of HRQOL and the importance of each HRQOL domain could serve as guides for clinicians to improve the HRQOL of caregivers of children with autism by targeting parental distress and focusing on the HRQOL domains perceived as most important by caregivers.",

author = "Tung, {Li Chen} and Huang, {Chien Yu} and Tseng, {Mei Hui} and Yen, {Hsui Chen} and Tsai, {Yu Pei} and Lin, {Yu Ching} and Chen, {Kuan Lin}",

note = "Funding Information: We especially appreciate the occupational therapists of Country Hospital, Department of Physical Medicine and Rehabilitation, and De Shang Clinic, the social worker and the director of the St. Raphael Opportunity Center, and Yong Cheng Rehabilitation Clinic for their assistance with recruiting participants. We also thank all the caregivers and children for participating in the study. This study was supported by a grant awarded to the corresponding author from the National Science Council of Taiwan (100-2410-H-006-103-MY3).",

year = "2014",

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doi = "10.1016/j.rasd.2014.06.010",

language = "English",

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AU - Tung, Li Chen

AU - Huang, Chien Yu

AU - Tseng, Mei Hui

AU - Yen, Hsui Chen

AU - Tsai, Yu Pei

AU - Lin, Yu Ching

AU - Chen, Kuan Lin

N1 - Funding Information: We especially appreciate the occupational therapists of Country Hospital, Department of Physical Medicine and Rehabilitation, and De Shang Clinic, the social worker and the director of the St. Raphael Opportunity Center, and Yong Cheng Rehabilitation Clinic for their assistance with recruiting participants. We also thank all the caregivers and children for participating in the study. This study was supported by a grant awarded to the corresponding author from the National Science Council of Taiwan (100-2410-H-006-103-MY3).

PY - 2014/9

Y1 - 2014/9

N2 - This study aims to investigate the correlates of health-related quality of life (HRQOL) and perceptions of the importance of each HRQOL domain in caregivers of children with autism. Eighty-two caregivers completed the World Health Organization Quality of Life and Parenting Stress Index Short Form to respectively measure the caregivers' HRQOL and parenting stress. The Childhood Autism Rating Scale and the Strength and Difficulties Questionnaire were used to respectively assess severity of autism and children's behavior problems. Results revealed that severity of autism, behavior problems, and parenting stress individually had low to moderate associations with HRQOL. However, all variables considered together, only parental distress (parent-related stress) significantly contributed to the four HRQOL domains. In addition, the physical domain was the most important HRQOL domain to caregivers, and environmental domain, the least. Knowledge of the correlates of HRQOL and the importance of each HRQOL domain could serve as guides for clinicians to improve the HRQOL of caregivers of children with autism by targeting parental distress and focusing on the HRQOL domains perceived as most important by caregivers.

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Correlates of health-related quality of life and the perception of its importance in caregivers of children with autism

Abstract

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