遺傳服務提供者與利用者對現階段尚無法治療之疾病遺傳檢測態度之差異

Translated title of the contribution: Health Care Provider and Consumer Attitudes Toward Genetic Testing for Non-treatable Genetic Diseases

Susan C Hu, 莊 茹潔, 王 瑤華, 黃 怡瑾, 林 秀娟

Research output: Contribution to journalArticlepeer-review

Abstract

Objectives: To compare the attitudes of genetic testing between health care providers and consumers to provide information critical to designing genetic education programs for different populations.
Methods: Study subjects comprised 412 medical professionals, 569 newlyweds, and 304 pregnant women in Tainan, Taiwan. The questionnaire was developed using case scenarios and data was collected by face-to-face interviews.
Results: Analytical results were divided into two principal categories:
1) Attitudes toward genetic testing for children under 18 years old
We first hypothesized a situation: ”if one parent carries a genetic disorder (or will likely become ill in the future), will you submit your children to genetic testing?” Analytical results indicated that > 85% of medical professionals and newly married couples would have their children tested. However, only 35.5% of pregnant women favored submitting their child to genetic testing; these future mothers considered their family's opinions more seriously than newly married couples did. Most newly married couples and pregnant women preferred discussing this issue with their spouses. However, a small number of respondents preferred that doctors make the final decision.
2) Attitudes toward prenatal genetic testing
Questionnaire results demonstrated that the 3 groups had the same opinion toward prenatal genetic testing, that is, more than 80% agreed to prenatal genetic testing if was likely to have a genetic disorder. The principal reason cited by newly married couples and pregnant women who agreed with prenatal genetic testing was ”having children with normal genes”, whereas medical professionals favored prenatal genetic testing to ”avoid genetic disorders”.
Conclusion: Differences among three study groups with respect to genetic testing may be due to their differing roles and viewpoints of these issues. Elucidating these differences would improve communication between health care providers and consumers.
Translated title of the contributionHealth Care Provider and Consumer Attitudes Toward Genetic Testing for Non-treatable Genetic Diseases
Original languageChinese (Traditional)
Pages (from-to)246-257
Journal醫護科技學刊 = The Journal of Health Science
Volume7
Issue number3
Publication statusPublished - 2005 Jul 1

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