Stress, needs, and quality of life of family members caring for adults living with HIV/AIDS in Taiwan

Ming Chu Feng, Jui-Ying Feng, Tun Chieh Chen, Po Liang Lu, Nai-Ying Ko, Yen Hsu Chen

Research output: Contribution to journalArticle

13 Citations (Scopus)

Abstract

The stress, needs and quality of life (QoL) of family members of people living with HIV/AIDS (PLWHA) are critical to explore in Taiwan where home care projects are not available to help the PLWHA families. We examined the extent of stress, needs, QoL and its correlates that family caregivers of PLWHA experienced with structural questionnaires survey. A total of 50 family caregivers of PLWHA visiting a medical center in Taiwan participated in the study from October 2005 to August 2006. Family caregivers felt most stressful on disclosure and stigma issues, and most worried about patients' interpersonal relationships. The most important needs were care-related needs including knowledge of the disease progression, methods of examination and treatment, and the related side effects. The level of stress significantly positively correlated with needs, and negatively correlated with QoL. Availability of alternative manpower to care PLWHA and being PLWHA's parents were two significant factors affecting family caregivers' QoL. In conclusion, family members of PLWHA experienced high level of stress, enormous caring needs, and poor QoL. A family-centered care for PLWHA and their families in the community is crucial to improve quality of care and to prevent family's overload, particularly for families with no alternative manpower and for those being PLWHA's parents.

Original languageEnglish
Pages (from-to)482-489
Number of pages8
JournalAIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV
Volume21
Issue number4
DOIs
Publication statusPublished - 2009 Apr 1

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Taiwan
family member
quality of life
Acquired Immunodeficiency Syndrome
AIDS
Quality of Life
HIV
Caregivers
caregiver
manpower
Parents
parents
Quality of Health Care
Disclosure
Home Care Services
Disease Progression
home care
Disease
examination
questionnaire

All Science Journal Classification (ASJC) codes

  • Health(social science)
  • Social Psychology
  • Public Health, Environmental and Occupational Health

Cite this

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abstract = "The stress, needs and quality of life (QoL) of family members of people living with HIV/AIDS (PLWHA) are critical to explore in Taiwan where home care projects are not available to help the PLWHA families. We examined the extent of stress, needs, QoL and its correlates that family caregivers of PLWHA experienced with structural questionnaires survey. A total of 50 family caregivers of PLWHA visiting a medical center in Taiwan participated in the study from October 2005 to August 2006. Family caregivers felt most stressful on disclosure and stigma issues, and most worried about patients' interpersonal relationships. The most important needs were care-related needs including knowledge of the disease progression, methods of examination and treatment, and the related side effects. The level of stress significantly positively correlated with needs, and negatively correlated with QoL. Availability of alternative manpower to care PLWHA and being PLWHA's parents were two significant factors affecting family caregivers' QoL. In conclusion, family members of PLWHA experienced high level of stress, enormous caring needs, and poor QoL. A family-centered care for PLWHA and their families in the community is crucial to improve quality of care and to prevent family's overload, particularly for families with no alternative manpower and for those being PLWHA's parents.",
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Stress, needs, and quality of life of family members caring for adults living with HIV/AIDS in Taiwan. / Feng, Ming Chu; Feng, Jui-Ying; Chen, Tun Chieh; Lu, Po Liang; Ko, Nai-Ying; Chen, Yen Hsu.

In: AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, Vol. 21, No. 4, 01.04.2009, p. 482-489.

Research output: Contribution to journalArticle

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