TY - JOUR
T1 - Complex Problems, Care Demands, and Quality of Life Among People Living With HIV in the Antiretroviral Era in Indonesia
AU - Lindayani, Linlin
AU - Chen, Yen Chin
AU - Wang, Jung-Der
AU - Ko, Nai Ying
N1 - Funding Information:
This study was supported by the Directorate General of Resources for Science, Technology and Higher Education, Indonesia (Ministry of Research, Technology and Higher Education). We would like to thank Mrs. Christantie Effendy for permission to use the Bahasa version of the Problems and Needs for Palliative Care. We are most grateful to all patients enrolled in this study for their valuable participation.
Publisher Copyright:
© 2017 Association of Nurses in AIDS Care
PY - 2018/3
Y1 - 2018/3
N2 - People living with HIV (PLWH) suffer from physical and psychological distress that palliative care could alleviate. Our cross-sectional study identified HIV-related problems and demands for palliative care at different disease stages, and their interactions with quality of life (QOL) in 215 PLWH from a referral hospital and an AIDS nongovernmental organization in Indonesia. A brief survey of demographic information, the Bahasa version of Problems and Needs of Palliative Care, and the World Health Organization Quality of Live in HIV-infected Persons instrument (WHOQOL-HIV BREF; Cronbach's alpha =.89) were used for data collection. Mean age was 33.5 years (SD = 4.7); 66% were male. Fatigue (67%) was the most prevalent symptom, and the symptom sleeping problems (54.9%) was the priority for palliative care. Higher spiritual and financial demands were found in PLWH with stage IV HIV. Multivariable analysis indicated negative associations between QOL and psychosocial problems, and demands for social and financial support. Interventions focused on psychosocial issues would improve the QOL for PLWH.
AB - People living with HIV (PLWH) suffer from physical and psychological distress that palliative care could alleviate. Our cross-sectional study identified HIV-related problems and demands for palliative care at different disease stages, and their interactions with quality of life (QOL) in 215 PLWH from a referral hospital and an AIDS nongovernmental organization in Indonesia. A brief survey of demographic information, the Bahasa version of Problems and Needs of Palliative Care, and the World Health Organization Quality of Live in HIV-infected Persons instrument (WHOQOL-HIV BREF; Cronbach's alpha =.89) were used for data collection. Mean age was 33.5 years (SD = 4.7); 66% were male. Fatigue (67%) was the most prevalent symptom, and the symptom sleeping problems (54.9%) was the priority for palliative care. Higher spiritual and financial demands were found in PLWH with stage IV HIV. Multivariable analysis indicated negative associations between QOL and psychosocial problems, and demands for social and financial support. Interventions focused on psychosocial issues would improve the QOL for PLWH.
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U2 - 10.1016/j.jana.2017.10.002
DO - 10.1016/j.jana.2017.10.002
M3 - Article
C2 - 29122428
AN - SCOPUS:85033226177
SN - 1055-3290
VL - 29
SP - 300
EP - 309
JO - Journal of the Association of Nurses in AIDS Care
JF - Journal of the Association of Nurses in AIDS Care
IS - 2
ER -
